Awareness of Rare Cancers (ARC) PCP Survey

Awareness of Rare Cancers (ARC) PCP Survey is a survey powered by

The ARC measure captures primary care providers' (PCP) ability to appropriately diagnose rare cancers as well as barriers to the appropriate referral of rare cancer patients from primary to specialty care. The results enable practices to better educate providers and ensure patients receive timely care.

Principle Investigators: Gayathri Devi, PhD, Sarah Weaver, MPH

Institution: Duke Cancer Institute

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The ARC measure was designed to be easily adapted to specific rare cancers or to assess provider experience with rare cancers generally.

The ARC measure was designed using rigorous qualitative methods and was originally designed to assess provider experience with Inflammatory Breast Cancer (IBC), a rare but lethal breast cancer variant. The content was informed through interviews, and review and pilot testing by PCP (MD/DO, NO, PA) from a broad range of settings (private practice, major academic medicine, federally qualified health center, corporate health) in both rural and urban areas.

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